All of our patients also have access to the Sheri & Les Biller Patient and Family Resource Center, which offers a wide array of support and educational services. Patients and loved ones may work with a coordinated group of social workers, psychiatrists, psychologists, patient navigators, pain management specialists and spiritual care providers at the center, as well as participate in programs such as music therapy, meditation and many others.
Myelodysplastic Syndromes (MDS) Foundation
US Patient Liaison: Audrey Hassan
P.O. Box 353
Crosswicks, NJ 08515
Phone: 800-MDS-0839, Fax: 609-298-0590
This is an excellent, comprehensive resource for both patients and professionals wishing to learn in-depth information about myelodysplasia. The MDS Foundation is a multidisciplinary, international organization devoted to the prevention, treatment and study of myelodysplastic syndromes. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.
Daily Strength Myelodysplasia Support Group
An Internet forum for myelodysplasia patients featuring discussions on diagnosis and treatments.
American Cancer Society
866-228-4327 for TYY
The American Cancer Society has many national and local programs, as well as a 24-hour support line, to help cancer survivors with problems such as travel, lodging and emotional issues.
National Comprehensive Cancer Network
The NCCN, an alliance of 21 of the world's leading cancer centers, is an authoritative source of information to help patients and health professionals make informed decisions about cancer care.
National Cancer Institute (NCI)
The NCI, established under the National Cancer Act of 1937, is the federal government's principal agency for cancer research and training.
U.S. Dept. of Health & Human Services National Institutes of Health (NIH)
301-402-9612 for TYY
The NIH is one of the world's foremost medical research centers, and the federal focal point for medical research in the United States. The NIH, comprising 27 separate institutes and centers, is one of eight health agencies of the Public Health Service, which, in turn, is part of the U.S. Department of Health & Human Services.
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